Thursday, June 22, 2017

Dementia and Parkinson’s -Seven Do’s and Don'ts


About half of the individuals develop dementia and significant memory or cognitive problems in the course of Parkinson’s disease.Initially, patients have slow thinking and may need more time to respond to questions. Most patients with Parkinson’s disease do not have memory problems in the beginning of the course of the disease. The memory and intellectual functioning gradually gets worse and negatively affects the activities of daily living. Initially,Parkinson’spatients may experience mild cognitive deficits with impaired planning, organization of goal-directed activity, visuospatial deficits, impaired problem-solving, and problems with learning.  Once patients develop evident dementia, their condition may deteriorate, increasing their disability and need for long-term placement.

Suggestions for those noticing memory issues with Parkinson’s!
1.When making a decision, give yourself enough time and avoid stressful situations.
2.To remember something specific, repeating several times may help to recall it later.
3.Relaxing and waiting may also help recalling.
4.Write down tasks and grocery items.Notepads can be very handy, use it to write down important information. Read the list a second time and keep it in your pocket.
5.Using a calendar to note important dates and events.
6.Staying positive is essential. Doubting your memory may cause you to become forgetful.

7.Always place things where they should be so it is easier to locate them later. 

Suggestions for care partners and others! 
1.Try not to argue with patients or correct each trivial mistake or tell them that they are wrong.
2.While talking to them one should not say “Remember when…”
3.One should avoid assuming that they can’t speak for themselvesand should let them speak for themselves as much as possible.
4.They should not be reminded of death of their loved ones or things that usually upset them.
5.They should not be addressed with other than their preferred name.
6.One should never lose patience with them, or tell them, “I just told you” or “you have already asked me” or “you are repeating same thing.”
7.One should not talk about them to others in front of them or discuss their situation in front of them to others.

Wednesday, June 14, 2017

Anthony Chambers Receives Dr. Rana International Parkinson's Community Service Award

Anthony Chambers a  Medical Assistant in the Neurology Associates, San Antonio, Texas, USA, receives Dr. Rana International Parkinson's Community Service Award for the Year of 2016.






World Parkinson’s Program announces the names of two recipients for the Dr. Rana International Parkinson’s Community Service Award for the year 2016, Anthony Chambers and Dr.Robert Wilcox. World Parkinson’s Program highly appreciates the passion of these inspiring individuals to improve the lives of those struggling with Parkinson’s.


The spirit and dedication of World Parkinson’s Program to make medical treatment of Parkinson’s disease available for every single individual affected with Parkinson’s in every part of the world continues through the efforts of such front-runners. Join us in congratulating the recipients of this prestigious award.
World Parkinson’s Program is a Canadian based global charitable organization which provides medications, walking aids, educational literature in more than 20 languages, and other supportive services to Parkinson’s patients in order to improve their lives every single day. These services aid the daily needs of every person affected with Parkinson’s and we strive to improve the “TODAY” of every individual fighting this debilitating disease around the globe. Dr. Rana International Parkinson’s Community Service Award is given yearly to a maximum of three individuals nominated globally.

Thursday, May 25, 2017

HALIMA KACHHVI - BLOGGER OF WORLD PARKINSON'S PROGRAM


HALIMA - ADVOCATING FOR THOSE AFFECTED WITH PARKINSON'S !

Halima joined the World Parkinson's Program as a volunteer while completing her Bachelor of Science degree at the University of Toronto. She has co-authored multiple research papers, which have been published in peer reviewed journals.

Halima primarily contributes her writings to blogs for the World Parkinson's Program and has a special interest in raising awareness for issues women with Parkinson's disease may face in various parts of world and their struggles with the adverse effects of Parkinson’s disease.

Given the continued rise in Parkinson's and its debilitating effects on the daily lives of patients, Halima hopes to create awareness, propagate knowledge and generate a push for supportive measures to improve existing conditions for Parkinson's disease patients through her writing efforts.

Wednesday, May 24, 2017

Nia Kalifa -Blogger of World Parkinson's Program

Nia Kalifa -Blogger of World Parkinson's Program


Nia Kalifa is a rising second year student attending Emory University in Atlanta, Georgia. She is on the pre-medical path with a major in Human Health and a minor in Development Studies. Nia is involved on campus by being a member of the Muslim Students Association, Resident Hall Association, Health Empowerment and Literacy @ Emory, and recently getting inducted into the International Medical Fraternity, Phi Delta Epsilon. Nia enjoys reading and writing, and is one of the contributors to the World Parkinson’s Program blogs, as she is also passionate about global health and international development.

Nabiha Rahman - Blogger of World Parkinson's Program

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Nabiha Rahman is a Social Media Executive at World Parkinson’s Program. She is an undergraduate student studying Psychology. In accordance with WPP’s goals, she realizes the importance of educating Parkinson’s patients and their caregivers about this disease and believes social media is an effective means of delivering this information in a simple manner

Saturday, May 13, 2017

PSYCHOSIS & PARKINSON’S – WHAT TO DO?


 Overall hallucinations and psychosis may occur in about 20% of Parkinson’s disease patients. Drug-induced psychosis in Parkinson’s disease is more common in the elderly and at times may be triggered by medications used for treatment of Parkinson’s disease.
Some drugs that may be involved in causing psychosis include: amantadine, selegiline, and dopamine agonists.

 Confusion and hallucinations can be very debilitating. It is crucial that these problems are discussed with a physician. The physician may modify the current drug therapy for Parkinson’s disease to minimize these symptoms. Hallucinations become more frequent when one is in an unfamiliar setting. Visual hallucinations and psychosis are among the major causes of long-term placement of patients with Parkinson’s disease. 

The visual hallucinations in Parkinson’s disease may be detailed and well-formed but non-frightening in most cases. Auditory hallucinations are rare but if they occur, they are accompanied with visual hallucinations. Patients with severe dementia might develop periods of confusion especially at sunset time. The following tips may help in coping with the visual hallucinations: 

1.      Adequate nutrition and fluid intake.
2.      Ruling out the precipitating factors such as infections, dehydration, and vision or hearing impairment.
3.      Improving night-time sleep.
4.      Turning on the lights at night in order to reduce shadows.
5.      Switching off the television when violent scenes are on.
6.      Caregiver may try to explain to the patient, but should neither argue with the patient that hallucinations are not real, nor reinforce them.
7.      Repeated orientation of patient and reassurance is absolutely essential.

A caregiver has to realize that a hallucination may seem very real to the patient. If the patient is beyond reason, but calm and non-threatening, nothing may be needed. However, if the patient is agitated and becomes violent, it is best to call for assistance to help avert serious injury. If needed, one should call emergency services.

Z. Sarfraz MBBS (Can) and R.K. Rana, OS (Can) IFS, World Parkinson’s Program, Toronto, Canada


Markham Mayor Appreciated Efforts of World Parkinson's Program

Mr. Frank Scarpitti, the mayor of city of Markham,Ontario, Canada and the city council appreciated highly the efforts of the World Parkinson's Program in their special message at the occasion of Gala Dinner of World Parkinson's' Program in Toronto on April 29, 2016.


World Parkinson's Program is a Canadian based non-profit, global organization with the mission of improving lives of all those affected with Parkinson's disease directly or indirectly.Our objectives include promoting EDUCATION, providing SUPPORTIVE SERVICES and ADVOCACY for Parkinson's patients and caregivers around the world. We aim to reaching every individual across the world who has been affected with Parkinson's disease to educate them in their own language, provide supportive services as well as to advocate for them at the local and global level.“Those who fight Parkinson's with knowledge always find solutions" is the central theme of this Program. This program was founded by a Canadian neurologist A.Q.Rana in 2008 and has chapters in many countries around the world.