Saturday, May 12, 2018

Pardon Me, Can You Say It Again!

Bulletin of,
World Parkinson’s Program  – www.pdprogram.orgISSN: 1929-4980                     Volume 10, Number 5, May 2018

Pardon Me, Can You Say It Again!

As Parkinson’s disease progresses, more than two third of Parkinson’s patients develop problems with speech. Parkinson’s patients may struggle during conversations. They may be asked to repeat their sentences. These changes bring about depressive symptoms, low morale along with reduced motivation to communicate. 

These communication difficulties affect the individual’s quality of life including social skills, lifestyle and emotional well-being. Their speech problems interfere with activities of daily living and patients are reluctant to participate in social engagements such as family gatherings or communicate and hold a conversation. Patients may have soft speech, monotonous and some patients start to experience hesitation when they begin to say a sentence. 
In addition to speech therapy, individuals with Parkinson’s disease may benefit from these general strategies:
·         Breathe fully before you speak so you do not run out of air before you finish the sentence
·         Maintain eye contact
·         Establish a topic before beginning a conversation
·         Rate of speechKeep it slow and even
·         Focus on lips and jaws: Force your lips and jaw to work hard as you pronounce words
·         Concentrate on finishing the sound of each word before starting the next
·         Help from friends and family: Have your family and friends tell you when your voice drops. Talk about the problem with family and friends.
·         Reduce background noise: Turn down the TV or radio if you have something to say
·         Try your best to talk for yourself, even if it takes longer. 
·         Hold your head up straight and speak directly into the mouthpiece of phone. Let your voice can warm up by practicing a few words aloud before dialing or answering
·         Clear your mouth of saliva regularly whilst talking
·         Deep breathing and relaxation exercises and exercises for jaw and lips may be helpful
·         Keeping the head in an upright position and giving more group speeches is also helpful
·         Most of all, RELAX

R.K. Rana, BSc (Can), Q. Hussain, BSc ,Z.Sarfraz,MBBS (Can) World Parkinson’s Program, Toronto, Canada

RECIPIENT OF THE DR. RANA INTERNATIONAL PARKINSON’S COMMUNITY SERVICE AWARD FOR THE YEAR 2017

Bulletin of,
World Parkinson’s Program  – www.pdprogram.orgISSN: 1929-4980                                                        April 11, 2018

CONGRATULATIONS TO OUR TORCHBEARER

RECIPIENT OF THE DR. RANA INTERNATIONAL PARKINSON’S COMMUNITY SERVICE AWARD FOR THE YEAR 2017

Announced on World Parkinson’s Day, April 11, 2018, 

Kevin Kwok, Theravance Biopharma, San Francisco, USA 

On April 11, 2018, the World Parkinson’s Day, the Executive Committee of the World Parkinson’s Program is pleased to announce Kevin Kwok as the recipient of the Dr. Rana International Parkinson’s Community Service Award for 2017. We take pride in Kevin’s passion of improving lives of people with Parkinson’s. Kevin’s spirit of giving back to community is highly commendable. World Parkinson’s Program’s mission of improving the care of people with Parkinson’s continues through torchbearers like Kevin. Join us in congratulating Kevin Kwok for receiving this highly prestigious award.

 Congratulations to Kevin Kwok!

World Parkinson's Program is a Canadian based global charity and it the only organization which provides free medications, walking aids, educational literature in more than 20 languagesto people with Parkinson’s around the world. Dr. Rana International Parkinson’s Community Service Award is given yearly only upto a maximum of three individuals globally.


 DONATE TO SUPPORT THOSE AFFECTED WITH PARKINSON'S

World Parkinson's Program provides free medications, walking aids and educational literature in many languages the neediest Parkinson’s patients around the world.Donate to support Parkinson’s patients who are not able to afford buying medications,



Armand Gilks, Chair World Parkinson’s Program, Toronto, Canada

 

WORLD PARKINSON'S PROGRAM (WPP) ANNUAL GALA APRIL 6


The Annual Gala of World Parkinson's Program was held on April 6 at the Crystal Fountain Banquet Hal in Markham, Ontario, Canada.More than 500 guests including various Canadian federal, provincial and local politicians, people with Parkinson's, caregivers, physicians, healthcare professionals and members of Parkinson's community attended this Gala. 

Rasheda Ali, daughter of Muhammad Ali, the boxing legend, and John Baumann, a US attorney who is a motivational speaker were guest speakers of this event. Dr. Rana, founder of  World Parkinson's Parkinson's Program also gave a lecture on increasing number of Parkinson's patients globally and lack of resources to help increasing number of Parkinson's patients. Representatives of media and other partner organizations were also present. Mr. Armand Gilks, Shaheer Aziz, Nadeem Hussain, Shelly Sedighi and other board members emphasized on the importance of providing free medications to Parkinson's patients who are not able to afford buying medications.They also provided educational information about Parkinson's disease in multiple languages to participants.

Mr. Shabbir Razakazee, the executive director of World Parkinson's Program highlighted how unique are services of World Parkinson's Program. He also mentioned that World Parkinson's Program is much different in its mandate than other Parkinson's organizations. World Parkinson's Program  is a Canadian charitable organization dedicated to improving the lives of Parkinson's patients and their caregivers  by providing providing free medications,walking aids and educational literature about Parkinson's disease in more than 20 languages to neediest Parkinson's communities globally. 



Shelly Sideghi,

World Parkinson's Program Canada

Get Free Parkinson's Medications - Submit Your Request

World Parkinson’s Program  – www.pdprogram.orgISSN: 1929-4980                                                        

Free Parkinson's Medications - submit your request 

In our effort to continue to improve lives of people with Parkinson’s, World Parkinson's Program (WPP) is accepting requests for Parkinson’s disease medications. All neurologists and physicians are encouraged to submit requests for Parkinson’s medications for their patients by March 31, 2018.

WPP is a registered Canadian charitable organization, and we can only provide medications under the following conditions:

Patient must have been diagnosed with Parkinson's by a certified neurologist or physician; 
Patient must not be able to afford to buy Levodopa (Sinemet) and
The request can only be submitted by the treating neurologist or physician. 

Please note, for now WPP is only providing Levodopa (Sinemet). 

Kindly submit your request by email at info@pdprogram.org

Only a limited number of requests will be selected on a first come first select basis, so please make sure to submit your requests as soon as possible. All submitted material becomes the property of World Parkinson’s Program and will not be returned. 



Armand Gilks, Chair, World Parkinson’s Program, Toronto, Canada
www.pdprogram.org

MAKE A DIFFERENCE IN SOMEONE’S LIFE TODAY!

Donate to provide medications, walking aids, multilingual educational literature to Parkinson’s patients around the world

Why Differentiating between OFF & ON Freezing?

Bulletin of,
World Parkinson’s Program  – www.pdprogram.orgISSN: 1929-4980            Volume 10, Number 2, February 2018



Why Differentiating between OFF & ON Freezing?

Freezing of gait is a sudden inability to take a step while walking in spite of trying. Freezing of gait is often seen in the advanced stages of Parkinson’s disease although a milder degree of freezing has been observed in the early stages.  Freezing is strongly associated with motor fluctuations, commonly observed in the “OFF period,” and is less common in the “ON period” (when dopaminergic medications are still active in the body). OFF freezing may improve by increasing the dose of levodopa or adding COMT inhibitors whereas ON freezing may get worse by these strategies. Therefore, it is important to differentiate between “OFF freezing” and “ON freezing”. 

Freezing of gait is more common in atypical parkinsonism such as vascular parkinsonism and progressive supranuclear palsy.  Freezing of gait may be directly related to the severity of disease, duration of Levodopa treatment, presence of dyskinesia, and early morning dystonia. Freezing if present during the early stages of Parkinson’s disease, may be suggestive of atypical parkinsonism. Once the patient breaks the cycle of freezing, they can walk normally or near normally .

R.K. Rana, BSc (Can), M. Rana, World Parkinson’s Program, Toronto, Canada

Freezing of Gait in Parkinson’s Disease

Bulletin of,
World Parkinson’s Program  – www.pdprogram.orgISSN: 1929-4980                          Volume 10, Number 1, January 2018



Freezing of Gait in Parkinson’s

Freezing of gait is an episodic inability to take a step or generate effective walking.  Moreover, it is a transient phenomenon that occurs suddenly and affects both legs. Most patients report a feeling of having their feet glued to the ground.  Freezing may come on when patient starts walking, trying to turn, passing through a narrow space, or when they reach their destination. Patients also have trouble dealing with barriers or time-restricted activities like stepping into an elevator, entering a revolving door, going through heavy traffic areas, or moving through narrow hallways.  Freezing is less common when going upstairs than walking on a smooth surface.  Freezing can lead to falls and many serious consequences.

Z. Sarfraz, MB(Can) and R.K. Rana, BSc (Can), M. Rana, World Parkinson’s Program, Toronto, Canada

Dr. Rana Visiting Pakistan in February


Canadian Neurologist and Parkinson’s Expert Dr. Abdul Qayyum Rana, who is the founder of World Parkinson’s Program visited Pakistan in February. He delivered several lectures on Parkinson's disease in Karachi, Islamabad, Lahore and other parts of Pakistan. On Feb 14, at Move in Pick Hotel Karachi, he was a special guest of honor for opening ceremony of Parkinson's Awareness Program in Urdu. A large number of Media representative and member of Parkinson's community as well as physicians attended this event.Addressing the healthcare professionals, he expressed his serious concern on increasing number of Parkinson's disease cases in Pakistan and globally and lack of resources. On Feb 14, in the morning, he delivered a lecture to Medical and Neuroscience faculty of Liaqat National Hospital Karachi where he emphasized on early diagnosis of Parkinson's disease..In the afternoon, Dr. Rana also gave a lectures at Agha Khan hospital Karachi where a large number of Parkinson's patients and caregivers participated in Q & A session in an open forum. Mr. Irshad Jan,was a mediator of this educational event.

On Feb 16, in the morning, he did a presentation to the faculty and local neurologists at Alshifa International Hospital Islamabad on " Non-motor Symptoms of Parkinson's disease. In the evening he addressed a large number of physicians, caregiver and patients at the conference hall of Integrated Health Services of Pakistan in Islamabad where was a key not speaker.He also conducted educational sessions on Parkinson's disease in Lahore and other parts of Punjab. A large number of educational material about Parkinson's disease in Urdu as provided to Parkinson's disease patients and caregivers free of charge. World renowned senior Parkinson’s disease educator, researcher, and author of several books, Dr. Rana has published extensively in the field of neuroscience.In addition to his clinical work, Dr. Rana spends a significant amount of time travelling internationally to educate healthcare professionals and patients about Parkinson's disease. 


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Dr. A. Q. Rana, MD, FRCPC, FRCP (HON)

Parkinson’s Clinic of Eastern Toronto and Movement Disorders Centre is a referral center for Parkinson’s disease and Movement Disorders patients.Parkinson’s Clinic of Eastern Toronto and Movement Disorders Centre is committed to imparting the education about Parkinson’s disease and Movement Disorders locally as well as globally.